Skip to main content

With the good comes the bad...

My hubby & favorite bald Beauty!
  Today started off a good day! I've been "training" my hand to start working again and I have managed to make it so that I could pull my hair in a halfway decent ponytail, something I previously couldn't come close to doing. I got Abigail dressed with a little less trouble and have even been able to type a little better using both hands.  
  First thing I called the Neurologist fully expecting to be told they wouldn't see me or that they couldn't see me for 3 weeks and I would have to pay $300 up front. After filling the receptionist in on what was going on and giving her my info, she told me she had an opening tomorrow @ 2:15! I was ecstatic. I told the nurse that she had just made me so happy! (Who would have thought going to a neurologist could make someone excited.) She did tell me I had to pay $141, but since I was prepared for hundreds, $141 was not so bad.  Shortly after my mother informed me that my dad was able to put me on their insurance since I am under 26 (for another 9 months anyways). It doesn't start for another 3 weeks, and I am hoping that whatever gets discovered will be covered, but we'll see. I was just so happy to know I would have coverage for prescriptions or whatever I may need.
   Later on in the morning I received a message from a new customer looking to meet me to discuss a job. I told him that I could meet him at his office in the afternoon. When I got to the office I discovered that there was only a flight of stairs to get to the second floor, no elevator. I looked at the stairs a little nervously since it was the first flight I had to climb since my leg began acting up. The customer poked his head down and I said "bear with me a second" and he could clearly see I was struggling, to which he replied "Don't worry, I've been handicapped all my life so I understand". He too had problems walking. It turns out that he is a Mental Health Counselor, and an extremely nice man! If I was in need of counseling, I would definitely consider going to him. He may have even sneaked in a little counseling on me while I was there, asking me about my symptoms and sharing a story about a friend of his with MS-telling me how she has to inject herself in the thigh every day. That made this strange illness far more real for me. It's hard to realize the severity of it when I keep telling myself "I could be feeling worse"...yes, eventually it could actually be much worse. When I left his office I was actually in high spirits. I truly think that we meet some people at certain times in our lives when their life experiences and stories can help us. And although I obviously am very aware of the fact that many people out there are disabled, it really helped to see someone else when I was feeling so self conscious about my hobbling around and gave me the strength to tackle those stairs without fear of my leg giving out. 
  After my errands today I was very worn out. I think the fatigue is setting in. For the most part, I think I handle fatigue well. I don't think I treat myself well enough to prevent or limit my fatigue--for instance I was still working until after 7:00 this evening-- but I think I manage ok when I am exhausted, so far.  As the afternoon progressed I began to feel much more achy and my whole body for the most part has become numb, with hypersensitivity. My stomach and back are about 10x worse than they were the last few days. Overall I am feeling pretty run down and almost flu-like.
  I just put my little girl to sleep and as I watched her fade off into her dreams, I realized how truly blessed I am. She is the most wonderful and amazing thing in my life, and I cherish every moment with her. It breaks my heart not being able to dance around with her or hold her in my arms for hours on end, but I look forward to those times with her again at some point, and for now will enjoy whatever I can do with her. I guess we have to sacrifice something for every good thing in life, and she tipped the scale when she was born, so it's time for me to pay up!
  I pray for a miracle, that this is something stupid and not as serious as MS..but I am preparing myself for the worst. Getting some answers no matter what they are will really help and I hope they come soon. 
  Tonight I am just going to relax on the couch with my hubby and watch some TV. I look forward to getting to explain these bizarre symptoms to another person tomorrow afternoon!

Comments

Post a Comment

Popular posts from this blog

The Dirty Little Secret about Deodorant...

So this post is from my other blog...   http://anewlifeforusall.blogspot.com/ .  I will duplicate some of the posts over to here...but please check that site out too if you are interested in reading my posts about natural products and creations! :) Source So Deodorant. We all know what it is...and I'd say probably 99% of us use it.  Why?  Well, originally it started off as a way to keep away the smell from sweating that was caused by dirt and bacteria.  But as times changed the newest and greatest thing was added to many deodorants..... ANTIPERSPIRANT. I am certain that the majority of people purchase their Antiperspirant Deodorants with out even giving a seconds thought to what they are putting on their body and what this product is actually doing to them. Let's take a look at the ingredients list on the back of a deodorant container... So the main ingredient I want to talk about just so happens to be the #1 Active Ingredient in an...

All Natural Homemade Toothpaste

My latest adventure in DIY Naturals...Toothpaste. Now, this isn't my favorite tasting product ever...but generally, anything with baking soda isnt very yummy.  However, knowing that it is sooooo much better than the chemical crap in store bought toothpaste...helps it taste a little better. :)  Have you noticed how expensive toothpaste is getting? It can be well over $4.00 a tube.  And, if you buy organic or all natural toothpaste from the health food store, you're looking at closer to $10!  I spent $8 on a little tiny tube of tooth gel for Abigail because I didn't want her to ever use the regular store bought junk.   Did you know that Fluoride is poisonous to us?  The following information is pulled from a great article that you can  read here "Fluoride is a pollutant,  a by-product of copper, iron and aluminum manufacturing. The problem of how to legally dispose of fluoride was solved in the 1930's when a study (funded by on...

Dealing with a second trimester miscarriage, My Story.

Our third pregnancy... In August 2016, my husband and I decided we wanted our third (and final!) baby.  We did "research" on old wives tales and statistics and any kind of information we could locate about how to increase the likelihood of getting our baby boy. (Although in reality we never cared about the gender, we just thought it would be nice to end with a little boy) We read about things to eat...things not to eat...things to do...you name it, we read about it.  We started preparing with ovulation testers.  Within a few days, I knew it had worked.  We waited a few weeks, and I took a pregnancy test.  It was positive. Soon after, at exactly seven weeks pregnant, the "morning sickness" started.  Which, let me tell you...Morning sickness is a phrase that really irritates me.  For me, it was NOT morning sickness. It was 24/7 non stop sickness.  Anything could send me running to the bathroom to hug the porcelain throne.  I was nauseated...