Super old picture-didn't have much on my laptop, but it does the trick! |
After the MRI I expected to have to wait until Tuesday for the results. Thursday AM my mother called and said she was flying in. While I was really trying to deal with this without help, it was starting to take its toll. I was feeling progressively worse and it was getting harder to do anything at all. My left arm had been getting numb and my right just keeps getting worse. We picked her up Thursday afternoon. Shortly after we got home the neurologists office called and said my results were back and my doctor didn't want me to wait until Tuesday so he asked another doctor to squeeze me in. My appointment was for Friday at 12:45. I arrived with my own personal support army: My hubby, daughter, mother, and amazing friends Cheryl and Renee. I was nervous though certain I knew the findings. Once we all packed into the small office room, the new doctor came in to tell me the inevitable. It looks like I have MS. "we found a LOT of lesions on your brain and spine. Not the most I've seen, but certainly not a few" he said. That's when I started to break. I was prepared for the diagnosis, bur I am only 25 and should only be a little broken if at all, not a LOT broken! How did this happen?
He proceeded to tell me I had two choices: Do a 3 day outpatient IV Course, or do a 3 day inpatient hospital stay. I wanted nothing to do with staying in the hospital and away from Abigail. But at the same time I knew I was no use to her in my current state. And I knew that doing outpatient meant waiting until Monday to start the process and maybe not getting in until after Thanksgiving, by which I could be a million times worse. Inpatient meant I could be almost done by the time Monday rolled around.
At 5:00 I was on my way to admitting. The woman in admitting said shes been seeing so many women my age that just had babies being diagnosed. What has our world come to that there are so many stressors in our lives that the stress on your body of having a baby is causing so many young women's immune systems to attack itself?? By 6:00 I was in a private room. By now I could barely move the fingers on my right hand at all. Kel stayed until about 7:15 when I sent him home to put Abigail to bed. My first nurse was fantastic. She was from England and had a wonderful accent. She was probably the nicest nurse I'd ever had. The night nurse was a different story. She was not friendly (though shes been a little better this morning). And she didn't start my IV until midnight. No sooner did the IV drip of 1000mg Solumedrol start than I started tasting the infamous metallic taste. Shortly after, the "MS hug" I had been feeling lessened a great deal. So far that has been the only change. But breathing is important so being able to do so without discomfort is a good thing. I finally fell asleep after 1 and woke up at about 5:30. No sleeping in, even on my supposed day off from everything.
They tell you not to be stressed and to relax, but you are taken away from your norm and thrown into the noisy hospital life. Where something is always buzzing or beeping and someone is always poking or prodding. I'm anxious to hear how my daughter did her first night away from me--I'm sure she did better than I did, and I can't wait to see her smile. This morning I am having some involuntary muscle movements in my right hand and leg, shaking and twitching from time to time. Hopefully with tonights IV I will start to be able to move more. I have a lumbar puncture scheduled for Monday (to rule anything else out and better confirm their diagnosis) so I guess maybe I can leave on Tuesday. As long as I am home for Thanksgiving!!
While I am certainly upset about this diagnosis, It could definitely be worse. If this is what I have to take in exchange for my amazing daughter, I will take it a thousand times. Now my goal Is to kick this MS in the face and tell it it has messed with the wrong chick! I have MS. MS does NOT have me. And I am fighting to win.
this is amazing. Thank you for sharing your journey so far Melissa. I pray only the best for you, Kel and Abigail. Thank God for moms!!!! Stay positive beautiful.
ReplyDeleteYou are an amazing woman Melissa! With your strength and a HUGE support system of thoughts and prayers, I know you will beat this! Love, Karen Piantek
ReplyDeleteMy Dear Lis,
ReplyDeleteYour beautiful daughter Abigail Juliet spent a wonderful evening with her Memere, no problems. Slept great thru the night and woke up with that beautiful smile of hers. So please don't worry, we are taking very good care of her for you until you return home. Just concentrate on getting better, stronger. That MS doesn't know what it's in for.... you kick its ass right out of you! Keep up that great positive attitude, that's the best medicine of all! I love you soooo much and I'm here for you, like it or not.
Hugs and Kisses,
MOM
Sending prayers to you and your family.
ReplyDelete