Skip to main content

Kicking MS in the Face!!

Super old picture-didn't have much on
my laptop, but it does the trick!
     So I still have absolutely no use of my right hand but I'm going to attempt an update.
  After the MRI I expected to have to wait until Tuesday for the results. Thursday AM my mother called and said she was flying in. While I was really trying to deal with this without help, it was starting to take its toll. I was feeling progressively worse and it was getting harder to do anything at all. My left arm had been getting numb and my right just keeps getting worse. We picked her up Thursday afternoon. Shortly after we got home the neurologists office called and said my results were back and my doctor didn't want me to wait until Tuesday so he asked another doctor to squeeze me in. My appointment was for Friday at 12:45. I arrived with my own personal support army: My hubby, daughter, mother, and amazing friends Cheryl and Renee. I was nervous though certain I knew the findings.  Once we all packed into the small office room, the new doctor came in to tell me the inevitable. It looks like I have MS. "we found a LOT of lesions on your brain and spine. Not the most I've seen, but certainly not a few" he said. That's when I started to break. I was prepared for the diagnosis, bur I am only 25 and should only be a little broken if at all, not a LOT broken! How did this happen? 
He proceeded to tell me I had two choices: Do a 3 day outpatient IV Course, or do a 3 day inpatient hospital stay. I wanted nothing to do with staying in the hospital and away from Abigail. But at the same time I knew I was no use to her in my current state. And I knew that doing outpatient meant waiting until Monday to start the process and maybe not getting in until after Thanksgiving, by which I could be a million times worse. Inpatient meant I could be almost done by the time Monday rolled around.
At 5:00 I was on my way to admitting. The woman in admitting said shes been seeing so many women my age that just had babies being diagnosed. What has our world come to that there are so many stressors in our lives that the stress on your body of having a baby is causing so many young women's immune systems to attack itself??  By 6:00 I was in a private room. By now I could barely move the fingers on my right hand at all. Kel stayed until about 7:15 when I sent him home to put Abigail to bed. My first nurse was fantastic. She was from England and had a wonderful accent. She was probably the nicest nurse I'd ever had. The night nurse was a different story. She was not friendly (though shes been a little better this morning). And she didn't start my IV until midnight. No sooner did the IV drip of 1000mg Solumedrol start than I started tasting the infamous metallic taste. Shortly after, the "MS hug" I had been feeling lessened a great deal. So far that has been the only change. But breathing is important so being able to do so without discomfort is a good thing. I finally fell asleep after 1 and woke up at about 5:30. No sleeping in, even on my supposed day off from everything.
They tell you not to be stressed and to relax, but you are taken away from your norm and thrown into the noisy hospital life. Where something is always buzzing or beeping and someone is always poking or prodding. I'm anxious to hear how my daughter did her first night away from me--I'm sure she did better than I did, and I can't wait to see her smile. This morning I am having some involuntary muscle movements in my right hand and leg, shaking and twitching from time to time. Hopefully with tonights IV I will start to be able to move more. I have a lumbar puncture scheduled for Monday (to rule anything else out and better confirm their diagnosis) so I guess maybe I can leave on Tuesday. As long as I am home for Thanksgiving!!
While I am certainly upset about this diagnosis, It could definitely be worse. If this is what I have to take in exchange for my amazing daughter, I will take it a thousand times. Now my goal Is to kick this MS in the face and tell it it has messed with the wrong chick! I have MS. MS does NOT have me. And I am fighting to win.    

Comments

  1. this is amazing. Thank you for sharing your journey so far Melissa. I pray only the best for you, Kel and Abigail. Thank God for moms!!!! Stay positive beautiful.

    ReplyDelete
  2. You are an amazing woman Melissa! With your strength and a HUGE support system of thoughts and prayers, I know you will beat this! Love, Karen Piantek

    ReplyDelete
  3. Suzanne Page-MeldonianNovember 19, 2011 at 7:51 AM

    My Dear Lis,
    Your beautiful daughter Abigail Juliet spent a wonderful evening with her Memere, no problems. Slept great thru the night and woke up with that beautiful smile of hers. So please don't worry, we are taking very good care of her for you until you return home. Just concentrate on getting better, stronger. That MS doesn't know what it's in for.... you kick its ass right out of you! Keep up that great positive attitude, that's the best medicine of all! I love you soooo much and I'm here for you, like it or not.
    Hugs and Kisses,
    MOM

    ReplyDelete
  4. Sending prayers to you and your family.

    ReplyDelete

Post a Comment

Popular posts from this blog

The Dirty Little Secret about Deodorant...

So this post is from my other blog...   http://anewlifeforusall.blogspot.com/ .  I will duplicate some of the posts over to here...but please check that site out too if you are interested in reading my posts about natural products and creations! :) Source So Deodorant. We all know what it is...and I'd say probably 99% of us use it.  Why?  Well, originally it started off as a way to keep away the smell from sweating that was caused by dirt and bacteria.  But as times changed the newest and greatest thing was added to many deodorants..... ANTIPERSPIRANT. I am certain that the majority of people purchase their Antiperspirant Deodorants with out even giving a seconds thought to what they are putting on their body and what this product is actually doing to them. Let's take a look at the ingredients list on the back of a deodorant container... So the main ingredient I want to talk about just so happens to be the #1 Active Ingredient in an...

Am I ok?

As I am nearing three months after my second trimester loss, I still have people asking me if I am ok.  Most of the time my response will be "yes I'm doing ok" or sometimes "I'm hanging in there".  If I am truly honest, the answer should be "Not really"...or at least "Not always". Yes, most days I would appear fine.  Many of those days I even feel basically fine.  But then there are the days when I just...don't. I'm not sure if it is still hormones, or just my body, mind, and soul taking it's own round about way to deal with the last few months.  Lately though, it has been tough.  Yes, I know, I have 2 wonderful and amazing little girls.  And they should be enough.  And they are.  And they're not.  I should be happy with my life. And I am.  And I'm not. I feel as though I am in a constant struggle with my self.  My heart and my brain are battling and I'm not sure who's winning.  At first, it seemed pretty...

Holiday 2012 Influenster VoxBox

So I just got my second Influenster VoxBox in the mail the other day... This one I am MEGA excited about!! It had a bunch of fun and exciting things in it....   Here is what I found when I opened the box.... The first item was the Goody QuickStyle Hair Brush.  It claims to help dry your hair 30% faster with these little microfiber bristle things in between the regular bristles.  I tried this out on the first day, and so far I really like it! I think it did in fact help my hair dry faster.  I am concerned that it might be difficult to clean hair out of the brush the way it is designed (I have long hair and tend to leave plenty behind after brushing)...But over all I think it is a pretty decent brush! Next up...my all time favorite... The Quaker Oats Medleys--Cherry Pistachio!!! I LOOOOVE Quaker Medleys....and somehow they knew the Cherry Pistachio was my favorite!  One of the best things for breakfast. I've always liked oatmeal...but this...